Flying Colours

Sorry for the delay in posting.Kaden got on really well at his hospital check up in Edinburgh.First of all we went to see the lady who made Kadens brace.She checked him over with it on and said he really has grown so hopefuly he will get another 6 months out of it but if we have any concerns with it getting small/tight to let them know as braces normally last from 1 year - 18 months.However by the next time for a checkup which is June he'll have had that brace 15 months.I said to her about his brace digging into his bottom and legs when he was sitting and often marked him with doing so...so the lady took som off the bottom @ the front and back and that seemed to make a difference.
Then Kaden went for an x-ray with his brace on to see what the curve in his spine is with the brace on as last check up it was 25 and this time it was 21!We are so pleased as the brace is doing what it should and preventing his curve from getting worse :) Kaden was a real star from start to finish as he got the x-ray on his own and stood and did exactly what he was told.
Then we went to see the surgeon who asked if we had any concerns which we replied no.He said he was pleased so far with Kadens progress as the curve is now 21 and he said the longer we can keep it straight with the brace the better,as Kaden will still need an operation but hopefuly not until he' in adolesance.
All in all we are so pround and thankful to have our wee star Kaden x

I have posted a photo of Kaden yesterday with his sisters boots on (he's so funny)as we have really bad snow here in Scotland already!.Kadens had a bad cold and cough this week and got an anti-biotic for it so yesterday was really the 1st day he was feeling better since being bedded up most of last week.

Hospital for a checkup

Kaden has the hospital tomorrow in Edinburgh for his 6 month check up since having his back brace fitted.Last time his curve was 38 without the brace and 25 with the brace so hopefuly tomorrow it'll be the same or better.We have a early morning ahead as the hospital is a 2.5 - 3 hour drive from here.Fingers crossed all will be well :)

Bad Blogger

Cant believe i havent blogged about my big boy turning 3 years old!His birthday was on the 25th July and he didnt have a party as such he just had his brother and sisters here and we had some ice-cream cake .Can hardly believe where the last 3 years have gone ~ but anyway we're glad we are where we are now!Here's some pictures of my big birthday boy 'Kaden' x

Countdown To Kadens 3rd Birthday :)

Two weeks today and my baby boy Kaden will be 3 years old ~ i can hardly believe this time 3 years ago we were on edge waiting for his arrival.I'm so glad things have turned out the way they have and Kaden's thriving.This week we have the hospital to see the respiritory doctor and also Kadens surgeon who has done all Kadens ops up until now.
Hopefuly we'll get a good report on both fronts as Kaden doesnt have any issues at all at the moment apart from the eating side of things and his brace hurdle,but all in all Kadens just a happy normal almost 3 year old who does all the things in life to be expected for a 3 year old.

Home from Holidays

Kadens had a great few weeks in Florida,we went there on the 7th-21st May.The weather was great and we went to Disney and just chilled out.On our way there when we arrived at Gatwick i realised i had forgot to pack his overnight pump machine for his feeds - i was devestated as this was the MOST important item.Before we had left the dietition had mentioned not taking it and seeing how he went without it,but Kaden hardly eats anything and i couldnt see how he'd survive for 2 weeks without it?Never mind we had no choice.We just gave him 2 or 3 bolus feeds of milk a day and also some of water.He did eat some things like the odd slice of cheese and crisps and biscuits.Overall i dont really know if he lost alot of weight as he's so thin anyway - but now we're home he's back on his night feeds for now.
Here's a photo of Kaden & Jaxon last night after their bath.

Back Specailist

Kadens consultant yesterday was really pleased with the progress so far with his brace.His curve in his spine was 38 and now its down to 25 within the last 8 weeks.he said its just buying time for the future and preventing the curve from getting worse as he reckons he'll need an operation around the age of 10years old,but he said also things could change and the curve might still worsen which means an operation to have rods inserted and and operation every 6 months to tighten them as he grows:-(but hopefuly this wont be the case - as for now we are sooooooooo pleased with our little star:)xx

Happy 1st Birthday Jaxon!

Happy 1st Birthday Jaxon - can hardly believe my baby boy turned one today!
Love Hugs & Kisses Mummy Daddy,Brooke Regan & Kaden xx