What a Speed...

Kaden has grown up over the last few weeks since he's become a 'big brother'.What a speed he moves at - he doesn't walk he runs!He's just learnt to open our back door and any opertunity he's off.The other night i was holding Jaxon in the lounge and Kaden was in the kitchen and all of a sudden i thought Kadens awful quiet (which normally means trouble) and i ran through to the kitchen to find he'd opened the back door and was out in the back garden with the dog picking up stones,i was just so reliieved that the back gates were closed as sometimes they are left open for the limos to come and go and i had visions of me running down the road looking for him!Boy is he a menace...the other day i had to pull staples out from his mouth,he just touches everything.He also had scissors in his hand the other day he'd found in the bedroom and came walking through the house with them in his hand and also a screwdriver.
That boy is worth the watching!!!!!!!!!

'Meet Jaxon'

Here's the newest arrival in the brown household - Jaxon Brown,was born on 8/4/09 @ 12.14 weighing 5lbs 11oz by c-section.So far so good.He's been such a good baby and content.Jaxon has a touch of jandice at the moment which we just need to keep an eye on,but basically it's only really on his face.Kaden doesn't seem too sure of him yet he just keeps his distance and says baba.He has thrown a toy yesterday at him,but generaly he just points and smiles at him - after all he's still a baby at only 20 months.I feel so guilty for leaving Kaden and staying over in hospital but i had no other option...but Kaden got on great with his dad and sisters and after a few days didn't even bad an eye that i wasn't around.Which i supose has made me feel worse the fact when we came home from hospital yesterday Kaden was kind of sulking with me and wasn't too fussed i was home!
Today we went to get some tiny baby clothes as everything drowns Jaxon at the moment,and i think i've over done it and strained my wound as i've been suffering all afternoon with it.So i came home and went to bed for an hour or so.Tomorrow i'll start to take things a bit slower,but it's really hard having a toddler that you want to lift and cuddle but can't.
On another note ; Thanks Kristy for the mention,and i'm so glad you like the parcel - and i can't wait to see your new baba. xx

Can you see me?

Here's a few pictures of Kaden trying out his new babys swing - He Loves sitting in it!!
Three days to go and baby brown will be here - i have to go into hospital on Wednesday for my c-section.

What a boy

Kaden these days spends his days climbing on things and opening cupboards and pulling things out allover the floor.He also sits beside the dogs bowl and moves her food from one dish to another...or scatter it across the kitchen floor.
Here's kaden today watching his sister and her friend on the trampoline - he's about through the window as he climbs on the back of the sofa.

Kadens baby brother is making an appearance on the 7th April as we went to the hospital last week and they have changed the date to 1 week sooner due to high blood pressure and having only 3cm of fluid round baby.We have an appointment for another scan on Tuesday to check the bloodflow to the baby,so hopefuly all will be well and then the following Tuesday baby brown will arrive.

Appointment @ Othopedics

Kaden had a hospital appointment on Wednesday about his back starting to curve.They looked at his 2 recent x-rays and some from his 1st few days of life and showed me the difference between then and now.He said that from day 1 Kaden had a slight but hardly noticeable bend in his spine which since then has become worse and he thinks he may have scoliosis.He said he wants an Mri scan done of Kaden and from there he will decide the next step to take - he wants too see if there are any abnormalities in his spine.The doctor said he would refer him to the surgeon in Edinburgh as we dont have one in Aberdeen and we'll take it from there.I'm a bit anxious as Kaden will need to go into the hospital in Aberdeen for a day and be sedated to do the Mri scan - so its just another waiting game.
Here's Kaden and his best pal having a snooze after a busy day.

Home from Hospital

I took Kaden to the doctors on Monday to be told they had no appointments as Kaden had been up most of the night coughing his feeds up.On the way to the doctors he coughed up brown stuff which really concerned me.Once the receptionist told me there was no appointments i showed her his burp cloth and said i wanted him seen.She called a doctor who took Kaden through to his office and checked him over.After a thorough check the doctor said he felt Kaden needed to be seen at the hospital as he had deteriorated since Thursday.He gave us a letter to hand in at the hospital and he also called the hospital to let them know Kaden was coming.
Once at the hospital they moniterd Kaden and put him through to the asessment ward wher we waited for a doctor to come to see us.The doctor came round and checked him over and put him down for a X-ray.Once the X-ray came back she said it was pretty much the same as the one from January.Which they weren't too concerned about.Because Kaden wasn't keeping his feeds down and had a temperature they wanted him to stay overnight and start dioralyte which is just a water with sugar to see if he kept that down.
We were transferred upto the medical ward and got a isolation room - which was quite nice rather than a busy ward.Kaden during the night was awake every 1 hour,every time i put my head down he seemed to waken up.
On Tuesday the doctor came and had a look at Kaden and said i could take him home in the afternoon if he kept the water down until lunchtime - which he did.But my poor boy was just so miserable.
At around 2p.m the doctor said we could go and gave us 48 hour access to the ward if things were to change,and he said just call them and head straight back up.Once home Kaden was just sleeping all the time and they had given me the dioralyte home with me to water down his feeds.So in the evening i set up his pump and watered down his milk and put him on his pump.He sleot really well - in fact all night...and i couldn't sleep for worrying he was ok.
Wednesday Kaden slightly improved but is still very weak...but today he looks alot better although he still has a terrible cough.
I had the midwife yesterday and she checked my bloodpressure which was up...which i told her was probably due to worry about Kaden,so she's doing a home visit tommorrow to check it again.Hopefuly all will be well as i dont fancy the weekend in hospital!!

Back to Doctor

I took Kaden back to the doctor on Thursday as he'd been fevered and coughing all night Wednesday.The doctor checked him over and said he heard something in his chest and because of his history he would give Kaden an antibiotic for a weeks course and to also keep giving Kaden calpol to keep his temperature down.
Since Thursday Kaden has been up and down,he follows me round the house saying hug..hug all day long.I hate to see him so miserable.Every night Kaden cant get slept for coughing and the last 2 nights i've switched off his pump during the night as he's being sick with coughing.
Tonight we are all having a early night with the hope of getting some sleep - although we better get used to sleepless nights as its only 6 weeks until baby brown appears!!

Feeding...

I had a word yesterday with the dietition about Kadens weight which is 8.5kg as i'm a bit cocerned.In October Kaden was weighed and he was 8.2kg and 2 weeks ago when he was admitted to hospital he was weighed again and he hadn't really gained that much.The dietitions plan was to change Kadens feeds during the day to a higher calorie milk and give him less of a bolus so he was still getting the calories but less milk - but with one thing and another this didn't really happen.So i called the dietition to discuss this plan and she told me to chang his feeds to the higher calorie one - which i did as of yesterday.And so far so good..it seems to be agreeing with him.We are still trying to push oral feeds of which seem to be getting sligtly better...some days better than others.Although Kaden seems more interested in trying more things.As long as the foods not too lumpy he'll tolerate some spoonfuls - yesterday he had a small yogurt at lunchtime and a handful of crisps and at tea-time he had 1/2 a yogurt.So we are getting there.But my poor wee boy still looks underfed!!
Day by day Kadens also getting steadier on his feet which is great to watch.
Here's some pics of Kaden today walking..my clever boy.

My Boy

Here's a picture of Kaden yesterday - he fell asleep on his dads running machine,as i caught up on reading all the cdh blogs!!Poor Boy!!If you cant beat them join them!!

Follow Up

Kaden had the physio today,and got on really well.When we arrived the physio was out of office - so as we waited Kaden was keen to get going!!So he strolled into the room where the physio worked and stood and watched another patient being treated.When the physio came she was really impressed to see Kaden on his feet,and even smiling!Everytime we went to physio Kaden used to cry as soon as we got there.So today was a real treat to see a happy smiley boy.She got Kaden to walk across the floor to her as she held a big yellow ball - which he did (slow but sure).Then she said she'd a video of Kaden walking,and smiling.She said she was going to sign Kaden off today as she knows he can walk when he wants,and is doing everything now a normal toddler would do.
So today as we left there were 3 happy people (Kaden,the Physio and mummy).
Kaden has been looking and feeling alot better this week,and his antibiotics are finished tommorrow - so hopefuly that'll be the last of the illness for a while and we can look forward to our new arrival in April.

Rough few days

Kadens had a rough time for the last few days.He's had a cough mainly at night time for the past three weeks.But a couple of days ago he started coughing during the day and it was like coughing fit - he couldn't stop.So i took him to the doctor on Tuesday and he checked him over and gave him an antibiotic for a weeks course.But on the Wednesday he seemed worse and he'd been up all night coughing and choking and being sick while on his pump,so in the end i switched his pump off to see if he would settle - but it didn't give him any relief and he was also bringing back up his medicine.I called the same doctor again who had agreed to see him again the next day if he hadn't improved.When Kaden was breathing you could hear like a rattle,and i was concerned it might be in his chest.So we went back to the doctor to get him checked over.After a thorough check the doctor said he felt now that the cold was now in Kadens chest and he was going to phone the A&E hospital for them to have a look at him.We went to the hospital where there too he got a thorough check over and we were put through to the admission ward to wait for a senior doctor.The doctor came and checked Kaden over and sais yes he had a wet cough and it had gone into his chest.They did an X-Ray to check and see how his lungs were doing and whether he needed any additional treatment apart from his antibiotics.He explained that if the x-ray came back and they wer happy with it we could do 1 of 2 things go home (because the hospital is only 5 minutes away)on antibiotics or if the X-ray showed concern then they would keep him in and start an iv.Thankfuly the doctor came round once the X-ray was down and showed it to me and said he did have signs of something on his right lung(good lung)but the antibiotics would clear that up,so if we were happy we could go home and keep giving him the antibiotics for a week.Speaking to the doctor also i mentioned his spine is being pushed over to the right,which we had noticed before but seems to be getting worse.He said they do see this often with CDH babies and he'd mention it to the orthopedic surgeon to see if we can look into it.Then he gave us the go ahead to go home if we wanted to :-
So of course we jumped at the chance to go home,and thankfuly Kaden had a better nights sleep last night only waking twice,compared with every 10-15 minutes the previous night.
This is Kaden chillin the other day having a snooze.

Bathtime Boy

Kaden over the past few weeks has relised washing,Bathing is not so bad after all.It used to be a real struggle to get him anywhere near water,so bathing or showering was a real task.But about 3 weeks ago the girls went in the bath with him and he soon settled.So tonight for the first time i sat him in his bath seat and was quite suprised - as he didn't scream the house down!When it was time to take him out he kept shaking his head,so i lifted him out and he cryed,so i put him back in for a few more minutes.As he was sitting in the bath i could see him looking at his hands as they were all pruned looking from being in the water for so long.There's a 1st for everything!!Yesterday i went for a 3D scan and Kaden suprised us yet again by walking unaided round the room while we were waiting to be seen.At home Kadens not so keen as we have wooden floor and can move faster by bum shuffling.At the scan we treid to get a 3d video and picture done - but baby brown was having none of it.His feet were up to his head and also a hand, so we could only see half of his face.She told me to go home and come back later that evening after tea-time to see if he would co-operate,but yet again his feet were down but his hand was in his face.So she told me we'd try again today which we did and yet again Mr Akward had his feet upto his chin and his hand on his face.
Here's a pic of Kaden today with my sunglasses on and reading a catalogue.
Eventually after trying for a while she gave up and said we can try again in a fortnight and hopefuly he'll have moved position.So we made an appointment for the 7th February so here's hoping we can get a look at this Boys face?!
She gave us a normal scan picture of his face to take home which i'll upload - see if you can see it?

Here Comes Trouble!

Kaden is all over the place these days.He has just learnt to climb the stairs,and this is his new trick.I spent my days running up and down the stairs to catch him just incase he fell backward.So a few days ago we bought a stair gate - best buy ever!!Kaden stood at the gate last night taking a wobbler wanting upstair to his sisters room - but his sisters were ignoring him as he touches everything and is always trying to touch their computers.
I took a photo of him trying to climb the stair gate last night in determination to get to the other side.

'Happy New Year'

I got a phone call from the newspaper Yesterday - saying they were looking over some stories they have done in the past,and would it be ok for them to do a follow up on Kaden.So today a photographer came round to take some photos.Kaden was not amused!!He wanted some pics of Kaden standing.Kaden kept making a run for the stairs...this is Kadens new trick - climbing the stairs (All day long!).
Hopefuly he got a few decent photo's.
I also had the midwife today for a check-up.All went well,she checked the babys heartbeat and also my blood pressure which normaly kreeps up later in pregnacy.But today she said my blood pressurewas the lowest she'd seen it...which is great.My next appointment to see the midwife is in 4 weeks for bloods - something i'm not keen on,but has to be done.
'Happy New Year' to all from the Browns xx

Back to Normal

I can hardly believe our litle man turned 17 months on Christmas day and Christmas has been and gone!!We had a quiet Christmas and Boxing day just eating and chillin,it was great...just my usual as my husband would say,doing nothing,HA HA If only!!Kaden and the girls got spoiled again and were happy with their presents.Kaden got a table with a train set on it which he LOVES.
Here's some pictures of Xmas day and Boxing day - Oh and i almost forgot, i got a camera for my Christmas so i've been getting plenty of practise taking pics!

Under the weather

Kaden has been off colour since the weekend.He's been sleeping alot during the day and unsettled at night.For the past 2 nights i've slept in the lounge from around 3a.m with Kaden as he's been crying constantly and poor Mikes been trying to grab some sleep before heading to his work.
Kaden has had a temperature and he's also been sick.We were suppost to change his milk this week after stopping it over the weekend to see if it was the milk that was making him sick.But now i think he's picked up a bug which will just take time to shift.
I called the dietition today to cancel an appointment Kaden had for Thursday as his new milk will need different packs for his continuious night feed - so they wer going to show me how to use them.But as i said to her Kadens still not right and i'd rather wait until he's better to change his milk,as i get a delivery on Tuesday.
Kaden is lying sleeping as i write this and he's not a happy chappie at the moment and it's so hard trying to get anything done without him crying when i put him down.
Hopefuly tomorrow he'll feel better.

'Remembering All Angels'

Tonight at 7 p.m the girls lit candles - Rembering all babies who have been taken away prematurly,and who are now angels.Babies such as Skyla and Elli and Faith,Kaden who all passed away this year due to CDH.There are many more Angels out there who have had other issues,so tonight we have been rembering them all.They will NEVER be forgotten.

'Merry Xmas From Kaden'

Physio

Kaden went to the physio yesterday.She just really observed his movements and played with him.Kaden HATES physio.He's fine until the lady goes near him or moves him.We started off in the big gym type room,and then she moved rooms to one with lots of lights and a disco ball.She put all the lights on and put off the bright light and Kaden was not impressed.Kaden seems to be coming along well,slow but sure - and hes only 16 1/2 months so hopefuly soon he'll be walking.Recently Kaden has been walking round the furniture and showing more interest in walking so hopefuly it wont be long.She made an appointment to see us again the beginning of February.
Our only main concern is still his feeding.Yesterday the dietition met with us and changed his milk for during the day to a higher calorie feed and we have to give him less of a bolus during the day so hopefuly he'll be more hungry.We never have 2 days the same at mealtimes.Sometimes Kaden will eat a few spoons the next he keeps his mouth firmly closed.This is another thing that will come - one day.If all goes well with his new milk they will chance his overnight feeds to the same milk.This will make life a bit easier as the overnight feed comes in a pack and i'll just ned to hang it up.

Pics

Sorry about the pictures,i've just noticed they are upside down - and being a woman i dont know how to correct it!!