Kadens has been getting better as the week has gone on.He's still on his antibiotics and still has a blocked nose,he's also been sleeping well so i think the karvol at night time seems to help.Apart from that he's back on the road to recovery.Which i'm glad about as we're off on holiday on Sunday and i wouldn't be keen to go if Kaden wasn't right.As i have enough to take with us and to think about already as our nurse at the hospital gave me a demonstration on how to put his g-tube back in if it were to come out.Kaden g-tube is held in by a water filled balloon,so she gave me sterile water and 2 new tubes to take and dressings.We also had to get a letter from our surgeon to say Kaden needed his prescribed milk to travel with us(3x12 cartons).And we'll also have to take his kangeroo pump for his night feeds and the bags for them!I don't know how we'll manage to get everything in our car as we have a 1hour and 1/2 journey to the airport.Never mind it'll be worth it for some heat!!I was reading tonights paper when i came across an article about a family who had a little girl called Faith Magee who was born with CDH in September-but sadly she fought for life for 8 weeks and finally she couldn't fight any longer.I was crying reading the story as CDH is so unpredictable and the doctors cant give you any answers until your baby arrives as each case is so different and there is a high mortality rate with cdh babies.It also makes you realise how lucky we are to have 'Our Special Boy'.There's a story about this baby Faith Magee on http://www.gonetoosoon.co.uk/ and i'm sure it'll break your heart too.
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