Busy Week

Kadens had a busy week this week.He got his haircut on Saturday (to stop people calling him a girl)and sat like a champ.Then on tuesday he had hs first day at nursery which went not too bad.He went in no problem and seemed ok when i left.I called around an hour later and the lady said he was fine had been in tears a few times but was ok.When i went to pick him up he came running over to me and then disappeared and came back holding a painting he had done.Once we left he seemed quite happy at the thought of going back again on thursday for another morning session.But today he was keen enough to go in but not so keen to stay without me.As i was leaving he came over and held his hand up for me to hold it and take him with me and then when he relised he was staying he started crying and i was ushered out of the room to be told he'll be fine..it broke my heart to see my baby crying.When i went back for him the ladys said he wasn't as settled as tuesday but was ok with a few tears along the way.I suppose its to be expected that there are tears to start with and once he's used to his surroundings he'll be fine...or here's hoping.
On wednesday Kaden also had his 2 year check up at the healthvisitors.She seemed happy with his speech and movement and his progress and said she would review his speech again in 3 months to keep me happy but by then she says he'll probably be speaking in sentences.
We've also been busy in our house this week as we are putting our house up for sale next week so we've been tidying up and disposing of alot of unneeded junk we've hoarded along the way.
So hopefuly this time next month the house will be sold as we have bought another one about 10 minutes away with more room for the growing but stopped growing brown brood!

Surgeon follow up

Kaden had a follow up with the surgeon today just for him to check on Kadens progress.He's quite happy with the way things are as far Kadens growth is.Kaden for height is average and he's still following below the bottom line of the chart for his weight which the surgeon seems happy enough with - he said its just his makeup.He asked about his feeding and how much hes eating.That varies from day to day.Kaden will put anything in his mouth but is not too good with swallowing hes better with things that meltsuch as digestives and butter,mini chedders, cheese slices,chocolate.We had a laugh with the Dr as i told him we went out for tea last night and Kaden had a tiny bite of my burger,and as we drove home he fell asleep so i put him straight into his bed.Then this morning i was changing his nappy and getting him dressed and i saw him chewing something and i said what have you got in your mouth and he opened his mouth and there was the piece of burger from last night!!Yuck!!
The surgeon also showed me Kadens x-rays from when he was born up until today and he thinks the curve in his spine wasnt present at bith but has got worse since 08 into 09.He says its probably in hie genes an he also has a pectus which normally comes hand in hand with a diaphramatic hernia.He also said if the surgeon in Edinbugh wishes to talk with him about Kaden past surgery his is quite happy to talk to him about it.He also said surgery regarding scholiosis is normally NOT rushed into and is normally done around adolesance.
So now its just the waiting game.

Results

Kaden had the hospital on Thursday last week for the results of his MRI Scan.The doctor said the MRI showed Kaden has NO abnormalities of the spine which is great news.He said he wanted another X-ray done which was done the same day.The doctor we met specializes in Club feet and other fields in Othopedics but not scholiosis.He said he would put Kaden forward to meet the Specialist surgeon in Edinburgh and we will have to take it from there and discuss all our options.He said we dont have to jump into an operation tomorrow but its something we might need to think about for the near future.
Another hurdle for poor kaden to get over as if he's not been through enough!Never mind we are so blessed to have our special boy with us.

Hols All Over Once Again

Back to the wet rainy Scotland once again!We came home from our holidays on Wednesday after a great 2 week break and great weather every day.The girls had a great time spending most days in the pool.Kaden also loved the water which was a suprise as he never would go in on previous occassions...and we didn't take any swim gear for him as we thought we were waisting our time but he proved us wrong.Jaxon on the other hand had other ideas as he only went in the water once as he wasn't keen on the cold water yet at home he loves the bath.
Time seems to just fly by these days as i cant believe the kids only have 3 weeks left of the summer holidays as already they have had 3 weeks.And when they go back on the 18th of August,Kaden starts nursery!
Heres some photos of our hols......

Respiritory Clinic

Kaden had the respiritory clinic yesterday.When we arrived Kaden got his height and weight checked...his weight is 21lbs 3oz which shocked me as i thought he would be heavier,and his height is 85c.m.The doctor he saw gave Kaden a good look over and sounded his chest.He said Kaden seemed to be fine breathing wise but mentioned his scholiosis.I said we're waiting on the results of the Mri which was done some weeks ago.We have an appointment at the hospital on the 6th August @ the othopedics.I asked if his spine looked bad and he said yes as Kaden is young and it tends to get worse as they get older and it can affect the lungs.He said just too wait and see what the specialist says.
One hurdle jumped and then another cropps up.Hopefuly it wont be as bad as we think.I took some photo's of the boys today with Kaden allover his brother as usual.

First day of Holidays

Today is the first day of the school holidays - so far so good.The girls went to the carnivals with their friends and the boys and i had a quiet afternoon at home.The weather here in the UK this past few weeks has been great its been lovely and warm and sunny for a change.When its been hot we've done plenty of walking with the boys and its been like being on holiday.Speaking of hols were off to Majorca on the 15th July..the girls cant wait.In fact i think we are all ready for a break and change of routine.
Kaden has the hospital this week on Thursday to the respiritory clinic,since last visit he's had 2 addmission into hospital so we'll see what they say,as the year before he had no hospital stays and they dismissed him for a year.
Just now Kadens into climbing.Brooke was in the garage sorting out a tent and Kaden was with her but disappeared and i came out to look for him,he was standing on the picnic table!!Then the day after he had thrown the ball out of our front garden onto the road and was standing on the wall shoting and pointing at it.Where in the process of getting prices to get a fence put ontop of the wall to keep Mr Menace in.
He's a great help with Jaxon getting nappies and wipes and such when he's not actually lying ontop of him trying to give him a hug or his dummy.
We aslo had a little drama on Saturday night with Kaden.He was on his machine in his bed and i went out of the room and left Brooke there with him.Brooke decided she'd go and get something from another room and left him and when i came through my boy was at the bottom of the bed ready to climb off with the machine which had fell down the back of the bed and he'd pulled his g-tube right out of his tummy - Boy what a panic...So grabbing a spare tube we have Mike held Kaden down and i had to do the nnedful and put a new one in as the hole closes really quick.Every time so far when Kadens had his tube changed the nurse says do you want to do it,but i'm quite happy to watch.This time i had no choice but to do it and really its easy its just the thought of it.For holidays incase it should happen again we're taking 2 spare ones.And as far as Kadens feeding goes during the day the dietition told me to stop them as i had called her regarding feeds for holiday and changing the quantaties for carrying,she said because Kaden was only getting 70ml bolous once a day we can leave it out as its only 70 calories.And when he's at the hospital this week we'll get him weighed to keep an eye on his weight...as Kaden with no clothes on is something else,he look like someone out of a concentration camp he's sooooo thin.

'Nursery'

I put Kadens name down for nursery and he's got a space to start after the summer as the nusery takes children from 2 - 4 year olds.We went on Thursday morning for a look round and Kaden at first was very unsure and just stood back and watched the other children.
After about 10 minutes one of the helpers took Kaden over to the snack table where some of the children were having a snack and sat him down.He sat down next to a little girl who was having a biscuit and milk.The lady gave Kaden some water and a biscuit and a piece of cake.He had a few bites of the biscuit then dropped it in his water.Then he had a bite if cake and left it.
Kaden then went over to the road mat and played with some cars,and then a bigger boy came over and pulled it from him and sqeezed his face which didn't bother Kaden but bothered me!!By this time i decided it was time to go home.I'm sure nusery will be good for Kaden as far as mixing and sharing goes but i'm a little unsure about leaving my baby somewhere i cant protect him,although i'm sure it wont do him any harm and maybe he'll learn to stick up for himself as he just stands and lets other kids pull toys away from him.
Kaden has the eating clinic on Monday and this time he's going to be doing messy play - i bet he'll LOVE that!

Eating Clinic

Kaden got on fine at the eating clinic on Monday.They had a group of around 6 or 7 parents and we started off by discussing eating worries and issues.Kaden has been putting pretty much anything in his mouth..(Even the dogfood)its just the swallowing.He seems to hold the food in his mouth forever until it dissolves.Apart from chocolate,he has no problem where he cant get enough in his mouth at one time!!LolThen they got some chocolate buttons and crisps (melt in your mouth ones)and yogurt and put them on a table for the children to eat and see the reaction.
I took Kaden over to the table and opened the yogurt and gave him a spoon and boy what a time he had.He eat his yougurt.He stuck his hand in the butttons dish took a hanful and eat a few crisps - and bingo that was lunch!Most teh other kids were pretty much at the same stage as kaden and some wouldn't eat hardly anything.They have scheduled it for again in 2 weeks and thereafter every fortnight.The next time thr kids will get to do messy play with some jelly to see if they put any towards there mouth.
I'm getting slow at blogging these days as there doesn't seem to be enough hours in the day.I spend my life feeding Jaxon,i put him down and then he screams so i pick him back up again.I cant seem to get anything done.
Jaxon has been slightly constipated so maybe he's just uncomfortable,and i'm hoping he'll grow out of the constant crying.
I'm up writing this during the night as i have really bad toochache,and i got up to take some painkillers.I called the emergency Dentist on Friday and they gave me an appointment for 1st thing Saturday morning.The dentist gave me some antibiotics to take as my face is swollen and my tooth is infected.I'm waitiong for an appointment next week again withe emergency dentist for an x-ray and some root treatment (Scary).
It's such a long time since i have hadd toothache but i wouldn't wish it on anyone as its soooooooooooo painful.Never mind hopefuly we'll get it sorted next week and i'll be back to normal.
Kaden got a police car this week as an early Birthday present as we'll be on holiday when its his birthday.He LOVES it.I'll post a pick of him getting in it...he spend most of the time getting in and out of it.

'Some pics'

Kaden is such a big boy these days,he seems to have grown since Jaxons arrived.His eating has been getting better by the week.He love thing with cheese in it - like macaroni cheese and cheese slices and cheesy crisps.He also loves yogurt and eats tiny bits of toast.He doesn't actually chew thing he waits until the food dissolves in his mouth..so mealtimes can take forever!!
Kaden has the hospital on Monday for the eating clinic (which he's never been to).There's going to be other children in the same position as Kaden as far as eating goes,so it will be interesting to see other children eating and with similar problems to Kaden.
Were still waiting on the results on Kadens MRI,hopefuly we should here shortly.
Kaden has been allover his brother recently like a rash..it's so funny to see.If Kadens in the same room as Jaxon and is quiet that means he either lying on him or trying to pick him up or stealing his dummy (Pacifier)Speaking about pacifiers i noticed on Sofies blog a pacifier called wubbanubs - and being me i couldn't resist.So after searching the net i got 2 sent over from the states..They arrived today so Thank you Sofie!!Also while checking on my cdh blogs i found another item i fancied a pokerdot stroller so need you ask i searched the net allover again and am getting one shipped over from the states(Thanks Carter!)
I think i need to stop looking at other peoples wares and focus on the cdh babes!

I found the charger at last for my camera so i'll post some pictures.

Mummys 'Little Star'

Kaden went to hospital for an MRI scan today.He was booked in for first thing in the morning and had to at the hospital for 8a.m.Mike took the day off and headed for the hospital first for 8a.m and i waited to see Regan off to school and then i headed straight for the hospital.We got there just around 9a.m just in time to see Kaden getting ready to head downstairs to the main hospital for his scan.Mike and i and Jaxon,a nurse and Kaden went to the scanning which was quite a walk away - the nusre had taken a wheelchair for Kaden but decided since i brought the pushchair that would suit better.Once at the MRI scanning area,they called Kaden through and Mike went through with him and waited until Kaden was given the Gas to put him to sleep - it breaks your heart watch him fight it and then drift off.Once asleep Mike came back to to waiting area where i was waiting with Jaxon and we waited for the nurse to come and tell us Kaden was ready to come back through and back to the ward.We got back to the ward at around 10.45a.m with a very unsettled Kaden who was just upset on waking up and wondering where he was.Once settled the nurse gave Kaden a slice of toast and some water - which Kaden had a good few bites of the toast and sips of water.If the food and water stayed down Kaden would get home.Thankfuly the food stayed down and we also gave him a bolus feed which stayed down.At around 12.45 we asked to be discharged and we got home.And thankfuly thats another hurdle over and we have to wait 2 weeks or so for the results.
Looking at Kaden later on in the day you would never know he'd been through anything different today.
Kaden was a real star today...and just took it all in his stride.
He was back to his normal cheeky self - standing on my windowsill which was a 1st for him today as he normally sits on it but today he went that step further and stood on it!
He also was walking around the kitchen with a pencil having a little scribble on the walls while casually walking past!
On a different note we got Jaxon weighed yesterday and he's upto 9lbs2oz.Boy does he like his milk!
I haven't taken pictures lately as my camera is still out of action - thanks to Kaden.
One day i'll take the time to look for my charger for my other camera, it's just trying to find the time with 4 kids as there's always something else comes up.

Camera

Kaden got hold of my camera yesterday before going in his bath - and need you ask he threw it in the bath..to be quickly fished out by his sister!So far it's not working but maybe come time once its dried out it might?Hence no pictures for a while,although i did get a new camera for xmas but i proffered the old one,and until i find my charger for my new one i cant post any pictures.
Here's hoping i find the charger or the 'wet' camera drys out!?
That mans worth the watching!!!!!

'Mummys helper'

Kaden has been a great help lately.I ask him to get the babys nappies and wipes and he goes and gets them for me.He comes with one nappy to start with then another and another until we end up with about five!
Kaden has never had a dummy(binkie)but lately when the baby drops his Kaden picks it up and puts it in his mouth!
Trying to keep an eye on Kaden at the same time as feeding Jaxon is a real challange,if he's not emptying the drawers out in the kitchen he's touching the waching machine or opened the door and in the back garden.So i've been trying to get him to stay in the same room as me and sit in Jaxons seat and watch the T.V.Which works sometimes.
On Tuesday we got confirmation that Kaden has to go into hospital for a day case to get the MRI scan done on his back on the 19th May.This is a day i'm dreading as he will get a general anesthetic - we knew the appointment was coming,but once i got the call i was in tears as i feel my boy has been through enough.
Hopefuly he's still young enough not to realise whats really going on and will recover just as well as previous visits.

What a Speed...

Kaden has grown up over the last few weeks since he's become a 'big brother'.What a speed he moves at - he doesn't walk he runs!He's just learnt to open our back door and any opertunity he's off.The other night i was holding Jaxon in the lounge and Kaden was in the kitchen and all of a sudden i thought Kadens awful quiet (which normally means trouble) and i ran through to the kitchen to find he'd opened the back door and was out in the back garden with the dog picking up stones,i was just so reliieved that the back gates were closed as sometimes they are left open for the limos to come and go and i had visions of me running down the road looking for him!Boy is he a menace...the other day i had to pull staples out from his mouth,he just touches everything.He also had scissors in his hand the other day he'd found in the bedroom and came walking through the house with them in his hand and also a screwdriver.
That boy is worth the watching!!!!!!!!!

'Meet Jaxon'

Here's the newest arrival in the brown household - Jaxon Brown,was born on 8/4/09 @ 12.14 weighing 5lbs 11oz by c-section.So far so good.He's been such a good baby and content.Jaxon has a touch of jandice at the moment which we just need to keep an eye on,but basically it's only really on his face.Kaden doesn't seem too sure of him yet he just keeps his distance and says baba.He has thrown a toy yesterday at him,but generaly he just points and smiles at him - after all he's still a baby at only 20 months.I feel so guilty for leaving Kaden and staying over in hospital but i had no other option...but Kaden got on great with his dad and sisters and after a few days didn't even bad an eye that i wasn't around.Which i supose has made me feel worse the fact when we came home from hospital yesterday Kaden was kind of sulking with me and wasn't too fussed i was home!
Today we went to get some tiny baby clothes as everything drowns Jaxon at the moment,and i think i've over done it and strained my wound as i've been suffering all afternoon with it.So i came home and went to bed for an hour or so.Tomorrow i'll start to take things a bit slower,but it's really hard having a toddler that you want to lift and cuddle but can't.
On another note ; Thanks Kristy for the mention,and i'm so glad you like the parcel - and i can't wait to see your new baba. xx

Can you see me?

Here's a few pictures of Kaden trying out his new babys swing - He Loves sitting in it!!
Three days to go and baby brown will be here - i have to go into hospital on Wednesday for my c-section.

What a boy

Kaden these days spends his days climbing on things and opening cupboards and pulling things out allover the floor.He also sits beside the dogs bowl and moves her food from one dish to another...or scatter it across the kitchen floor.
Here's kaden today watching his sister and her friend on the trampoline - he's about through the window as he climbs on the back of the sofa.

Kadens baby brother is making an appearance on the 7th April as we went to the hospital last week and they have changed the date to 1 week sooner due to high blood pressure and having only 3cm of fluid round baby.We have an appointment for another scan on Tuesday to check the bloodflow to the baby,so hopefuly all will be well and then the following Tuesday baby brown will arrive.

Appointment @ Othopedics

Kaden had a hospital appointment on Wednesday about his back starting to curve.They looked at his 2 recent x-rays and some from his 1st few days of life and showed me the difference between then and now.He said that from day 1 Kaden had a slight but hardly noticeable bend in his spine which since then has become worse and he thinks he may have scoliosis.He said he wants an Mri scan done of Kaden and from there he will decide the next step to take - he wants too see if there are any abnormalities in his spine.The doctor said he would refer him to the surgeon in Edinburgh as we dont have one in Aberdeen and we'll take it from there.I'm a bit anxious as Kaden will need to go into the hospital in Aberdeen for a day and be sedated to do the Mri scan - so its just another waiting game.
Here's Kaden and his best pal having a snooze after a busy day.

Home from Hospital

I took Kaden to the doctors on Monday to be told they had no appointments as Kaden had been up most of the night coughing his feeds up.On the way to the doctors he coughed up brown stuff which really concerned me.Once the receptionist told me there was no appointments i showed her his burp cloth and said i wanted him seen.She called a doctor who took Kaden through to his office and checked him over.After a thorough check the doctor said he felt Kaden needed to be seen at the hospital as he had deteriorated since Thursday.He gave us a letter to hand in at the hospital and he also called the hospital to let them know Kaden was coming.
Once at the hospital they moniterd Kaden and put him through to the asessment ward wher we waited for a doctor to come to see us.The doctor came round and checked him over and put him down for a X-ray.Once the X-ray came back she said it was pretty much the same as the one from January.Which they weren't too concerned about.Because Kaden wasn't keeping his feeds down and had a temperature they wanted him to stay overnight and start dioralyte which is just a water with sugar to see if he kept that down.
We were transferred upto the medical ward and got a isolation room - which was quite nice rather than a busy ward.Kaden during the night was awake every 1 hour,every time i put my head down he seemed to waken up.
On Tuesday the doctor came and had a look at Kaden and said i could take him home in the afternoon if he kept the water down until lunchtime - which he did.But my poor boy was just so miserable.
At around 2p.m the doctor said we could go and gave us 48 hour access to the ward if things were to change,and he said just call them and head straight back up.Once home Kaden was just sleeping all the time and they had given me the dioralyte home with me to water down his feeds.So in the evening i set up his pump and watered down his milk and put him on his pump.He sleot really well - in fact all night...and i couldn't sleep for worrying he was ok.
Wednesday Kaden slightly improved but is still very weak...but today he looks alot better although he still has a terrible cough.
I had the midwife yesterday and she checked my bloodpressure which was up...which i told her was probably due to worry about Kaden,so she's doing a home visit tommorrow to check it again.Hopefuly all will be well as i dont fancy the weekend in hospital!!

Back to Doctor

I took Kaden back to the doctor on Thursday as he'd been fevered and coughing all night Wednesday.The doctor checked him over and said he heard something in his chest and because of his history he would give Kaden an antibiotic for a weeks course and to also keep giving Kaden calpol to keep his temperature down.
Since Thursday Kaden has been up and down,he follows me round the house saying hug..hug all day long.I hate to see him so miserable.Every night Kaden cant get slept for coughing and the last 2 nights i've switched off his pump during the night as he's being sick with coughing.
Tonight we are all having a early night with the hope of getting some sleep - although we better get used to sleepless nights as its only 6 weeks until baby brown appears!!

Feeding...

I had a word yesterday with the dietition about Kadens weight which is 8.5kg as i'm a bit cocerned.In October Kaden was weighed and he was 8.2kg and 2 weeks ago when he was admitted to hospital he was weighed again and he hadn't really gained that much.The dietitions plan was to change Kadens feeds during the day to a higher calorie milk and give him less of a bolus so he was still getting the calories but less milk - but with one thing and another this didn't really happen.So i called the dietition to discuss this plan and she told me to chang his feeds to the higher calorie one - which i did as of yesterday.And so far so good..it seems to be agreeing with him.We are still trying to push oral feeds of which seem to be getting sligtly better...some days better than others.Although Kaden seems more interested in trying more things.As long as the foods not too lumpy he'll tolerate some spoonfuls - yesterday he had a small yogurt at lunchtime and a handful of crisps and at tea-time he had 1/2 a yogurt.So we are getting there.But my poor wee boy still looks underfed!!
Day by day Kadens also getting steadier on his feet which is great to watch.
Here's some pics of Kaden today walking..my clever boy.